Archive for the 'Uncategorized' Category

We love advocates in the medical community!

This story by Fox News features our perinatologist and friend, Dr. Steve Calvin. Thanks Steve!!

New, Safer Test for Down’s Pregnancies

Created On: Tuesday, 24 Feb 2009, 4:28 PM CST

MINNEAPOLIS - A new test for Down syndrome coming out soon promises to have more definitive results without being as invasive. But some think the advance in technology is not a good idea.

With three children at home Cindy Bayer has her hands full. But four years ago, when she had twins, Adrienne and Kaley, the future was unknown.

“It was hard because we realized that things weren’t going to be what we thought they were going to be,” Bayer.

At 26 weeks pregnant, an ultrasound showed signs that Adrienne had Down syndrome. The only way to find out was an invasive and potentially life-threatening test to the fetus call amniocentesis. But now there is hope for mothers to go through safer, less invasive testing for Down syndrome.

Doctor Steve Calvin treats woman with high risk pregnancies.

He recently attended a conference in San Diego where a company unveiled a maternal blood test that can determine Down’s with high accuracy.

“My biggest hope for the test is that people have a conversation about what Down syndrome really means.”

But he’s fearful the easier test will lead to more parents terminating pregnancies.

“My concern is that people will feel that people with Down syndrome are not valuable and I think that would be a big mistake.”

For Bayer, she hopes the new tests arm families with information about Down syndrome and allows them to make an educated decision on what to do.


Elly Got Glasses

Elly got glasses this fall.  She does a great job of leaving them on in school.   We are working on expanding that to other venues, but for now we are thrilled that she wears them in school, along with her hearing aid.  She has focusing in her right eye when things get too close and the eye will sometimes cross.  The opthamologist thinks that the glasses will be temporary and needed for about 3 years.  We got her glasses from Specs 4 Us.

Glasses-for-Elly by you.


Super Girls!

We had Superwomen for Halloween this year.  Actually, Elly was a Super Trick or Treater and wanted to keep on going!   :)

Super-Girls-2     Super-Girls

Super-Girls-and-Jay by you.


Trig Palin has quite a following!

Oct. 15: NBC’s Savannah Guthrie talks about Republican vice-presidential candidate Sarah Palin’s focus on Down syndrome and her relationship with her baby son Trig. See the video HERE !


Cool - a blog award!

Miss Tarenne at Tarenne’s Tales gave us this award.  It is our first blogging award and we are honored!!  Nicole and Tarenne have been wondeful sources of inspiration and love on our journey with T21 (a.k.a. Down syndrome).  I was also inspired by Nicole to begin this blog.  She is an amazing person who has a fresh and honest way of sharing her family’s story.  Be sure to follow her adventures with 4 girls over at All 4 My Gals.  We are humbled by all the great friendships and families we have met on this wonderful journey.

Now, we would like to pass this award along to:

  1. The Linkerts at A Home in Mound
  2. Susan at This Girl is Not An Island
  3. Sara at It’s Always Something

Tropic Thunder

Here’s some data about the film, gleaned from an advance screening of “Tropic Thunder” arranged for me this afternoon by DreamWorks/Paramount.

This post attempts to assemble information that may help readers and advocates frame their own opinions about questions that have been raised about the language used in the film and its marketing, and the portrayal of the character of Simple Jack.

– The Background –

“Tropic Thunder” is a big-budget, R-rated summer comedy made by DreamWorks/Paramount and directed and co-written by Ben Stiller, who also stars. The movie plot centers around a group of pampered actors who are lost in the jungle while making a war movie. Stiller’s character, Tugg Speedman, is presented as a fading action hero who earlier failed in his bid for Oscar glory while portraying Simple Jack, a character with an intellectual disability. Speedman’s portrayal of Simple Jack is featured as a movie within the movie.

A national coalition of disability advocacy groups has objected to the frequent use of the word “retard” in “Tropic Thunder” and its promotional materials. Early promotion of the film described Simple Jack as a “retard” and an elaborate DreamWorks marketing website that was taken down this week in response to complaints carried the tagline “Once upon a time … There was a retard.”

One scene that has been much discussed on the internet is the one in which Robert Downey Jr.’s character advises Stiller’s character to “Never go full retard.”

The term “retard” has been characterized by disability rights advocates as hate speech that heaps insult and possible harm on a group that has a long history of being stigmatized and vulnerable. They compare it with racial, ethnic and sexual epithets and stereotypes that have historically been used by majority groups to target and humiliate minority groups.

Studio executives have said the film is a comic satire intended to josh actors and the entertainment industry, not people with disabilities. They say the film plays broadly for laughs, offers equal offense to all groups, and is intended only as entertainment without a deeper subtext.

Stiller’s performance as Simple Jack is visible in the film from beginning to end, and provides a critical plot point needed to advance the film to its conclusion. The plot involving Simple Jack, and Stiller’s portrayal of the character, occupy close to 30 minutes of screen time. In character, Stiller speaks in a stilted, stuttering, adenoidal fashion, and wears overalls, bad false teeth and a classic institutional bowl haircut.

The film premieres Monday and is scheduled for nationwide release on Wednesday. As of this writing, promised screenings of the film for disability rights advocates have been postponed until Monday, the day the film premieres.

– The Tally (all approximate) —

Number of repetitions of the word “retard” or its variations: At least 16 in the “full retard” scene alone, not counting the uses of words like “idiot,” “moron,” “moronical,” “imbecile,” “stupid,” “dumb” and “the dumbest M*****F***** that ever lived.” All are used to describe the character of Simple Jack, who is described in an introductory segment as a “mentally impaired farm hand who can talk to animals.”

Number of repetitions of the word “nigger”: Once, said by a black character criticizing a character pretending to be black.

Number of uses of other racial/ethnic/sexual epithets: None observed.

Also observed:

  • Mocking references to gay people and fat people;
  • One character portrayed as a white man who has darkened his skin to play a black man. A black character criticizes him several times for impersonating a black man.
  • Extensive use of vulgar humor and profanity. (For example, number of variations of the word “F***”: Far too many to count accurately. Fart jokes are prominently featured.)
  • Many jokes about the shallowness, self-involvement and ignorance of actors and Hollywood executives in general.

– The Scenes –

In a filmed “television report” on Speedman’s portrayal of Simple Jack, Stiller stutters in a stereotypical fashion through lines like “I’ve got a G-G-G-G-G-good brain” and “You M-m-m-m-m make me happy.” The television interviewer (Access Hollywood’s Maria Menounos) responds in a mocking tone, saying, “Can Speedman M-m-m-m-make audiences happy?”

In a conversation with his agent, played by Mathew McConaughey, Stiller’s Speedman talks about his plans to adopt a child. “At least you get to choose yours,” says the agent, looking sadly at a photograph of himself with a slack-faced teenaged boy who appears to have an intellectual disability. “I’m stuck with mine.” (The teenaged boy turns up with his father on an airplane later in the movie, staring vacantly out the window.)

The “full retard” scene between Stiller’s Speedman and Robert Downey Jr.’s Kirk Lazarus is more extensive than the clip distributed on the internet. Among the lines not included in the Internet version:

Stiller: You know, it was an intense experience, you know? I just did the work. I watched a lot of retarded people, spent time with them,observed them, watched all the retarded stuff they did …..

… In a weird way, I had to free myself up to believe that it was okay to be stupid or dumb.

(Exchange with Downey Jr.) To be a moron. to be moronical. To be a moron. To be an imbecile. To be the dumbest M**** F***** that ever lived … Stupid ass Jack.

Stiller: By the end of it I was like, wait a minute. I’ve flushed so much out … how am I going to jump start it up again?

Downey: Yeah, you was farting in the bathtub, laughing your ass off …

In a motorized poster in his agent’s office, Simple Jack is seen hitting butterflies with a sledgehammer.

Stiller is made to re-enact Simple Jack to entertain his captors, and dons a coconut wig, improvised overalls and borrowed dentures to act the part. When he doesn’t perform the way they like, they hit him and say “more stupid.”

Stiller (at bedside of dying mother): Good night mama. Now you can have ice cream in heaven. I see you tonight when I go to bed in my head movies. But this head movie makes my eyes rain. (Copious weeping)

Just the facts … about ‘Tropic Thunder’


Easter 2008

We weren’t dreaming of a white Easter, but we still had a great day!  BTW, Greg said this was the earliest Easter since 1913!


 


Happy Veteran’s Day!

American flag waving animated Gif (lg), originally uploaded by gravityx9.


Playing catch up…..

I have been caught up in my busy life (which is not exactly a bad thing) and have neglected my site.  My intentions now are to post a bunch of pictures bactracking the almost 2 months since I have posted.   Sinced I tend to like things orderly I, of course, am going to back up and keep things chronological!!  Enjoy!


(3-2-07) Favorite Ingredients Friday…………”Tortilla Soup”

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We love soup in the winter and we’ve had plenty of winter this week!! Here is a quick and easy recipe for Tortilla Soup. Enjoy.

Tortilla Soup

1 can (10.5 oz.) condensed chicken with rice soup, undiluted

1 1/3 cups water

1 cup salsa

1 cup canned pinto beans, rinsed and drained

1 cup canned black beans, rinsed and drained

1 cup frozen corn

1 cup diced cooked chicken

1 tsp. ground cumin

Crushed tortilla chips, shredded cheddar cheese and sour cream.

In a large saucepan, combine the first eight ingredients. Cook over medium-high heat for 5-7 minutes or until heated through. Serve with tortilla chips, cheese, and sour cream. (5 servings) For more great recipes check out Overwhelmed With Joy’s site!


(2-9-07) Favorite Ingredients Friday…………”CHOCOLATE”

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In preparation for Valentines Day next Wednesday, Overwhelmed with Joy’s Favorite Ingredients Friday recipe exchange is having a chocolate edition!! Click on the picture to check out other great chocolate recipes. Just for fun I’d like to add that chocolate does contain antioxidants and you can read about it’s health benefits here from the Baylor College of Medicine!

I actually have 2 recipes today and both are from my friend Kate. She is the best cook and baker!! She has been trying out recipes for a bridal shower she is planning and I often get to be one of the lucky tasters. So the first recipe for Chocolate Almond Cheesecake Bites is definately on her shower list! I was even able to snap a picture from a goodie plate she made for me.

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Chocolate Almond Cheesecake Bites

Ingredients:

Crust:

1 cup chocolate cookie crumb (oreos)

¼ cup butter melted

Filling:

8 oz. cream cheese, softened

¼ cup sour cream

¼ cup sugar

1 egg

¼ tsp almond extract

Coating 1:

2 1/3 cups semi-sweet chocolate chips

3 Tblsp. Shortening

Coating 2:

2 ounces vanilla flavored candy coating (almond coating)

1 teaspoon vegetable oil

Directions:

Crust: Heat oven to 300*. Cut 14 X 12 inch sheet of foil and line 8 inch square pan with foil. Spray the foil with cooking spray. In small bowl mix cookie crumbs and melted butter and press into the bottom of the pan.

Filling: In large bowl beat cream cheese, sour cream and sugar with electric mixer on medium speed until fluffy. Beat in egg and almond extract scraping bowl if necessary. Pour over crust. Bake 30-40 minutes or until edges are set. Center will be soft but will set when cool. Cool on cooling rack 1 hour. Cover and refrigerate for 1 hour.

Coating: Meanwhile cover 2 cookie sheets with wax paper. Remove cheesecake from pan by lifting foil. Cut into 8 rows by 6 rows making 48 cheesecake bites. In 1 quart microwavable bowl, microwave chocolate chips and shortening uncovered on medium for 3 minutes, stir, and microwave in 15 second intervals until smooth. Work with ½ the bites at a time. Keep the other half refrigerator. Dip individually by placing one bite on fork and dipping into the chocolate to coat. Place on wax paper to dry and repeat with the second half. Melt white chocolate in microwavable bowl with oil on high for 1 minute. Stir and microwave in 15 second intervals until smooth. Spoon into a small re-sealable plastic bag and cut a tiny hole in bag corner and pipe/drizzle melted coating over dipped bites. Store bites in refrigerator.

 

 

The second recipe I’m sharing is for White Chocolate Party Mix Surprise, the surprise is the bit of caramel, which I think is just wonderful. I ate myself a little sick on this the other day, but I’d do it again!!

White Chocolate Party Mix Surprise

Ingredients:

2½ cups Rice Chex

2 cups butter pretzel sticks

1 cup mixed nuts

½ bag Kraft caramels cut into 6 pieces each

1 bag (12 oz.) White Chocolate Chips

Directions:

Mix dry ingredients in large bowl. Melt white chocolate chips, pour over mixture, spread out on wax paper to dry.