Archive for April, 2008

Extras releases the new Foot Phone!

I’m sure you’ve heard of the flip phone, the slide phone and even the i-phone? Well, Elly’s Extra’s releases the all new Foot Phone. Guaranteed never to run out of batteries (yup I said NEVER!) and almost impossible to lose (thanks to low muscle tone)! Also featuring a special esteem boosting message of “love you to pieces” daily! Call and hear it for yourself, she takes requests!

Phrases to listen for include: “Call Tammy”, “Hi Tammy”, “Hi Bob”, “Hi Anna”, “Good Morning”, “Hi Conner”, “Blair” and “Bye”. Elly loves Tammy, can you tell?


The Memory Keepers Daughter on Lifetime this Saturday night!

A book that I really enjoyed reading was The Memory Keeper’s Daughter by Kim Edwards. It was one of those novels that kept me up too late; I thoroughly enjoyed reading it!

This stunning novel begins on a winter night in 1964, when a blizzard forces Dr. David Henry to deliver his own twins. His son, born first, is perfectly healthy, but the doctor immediately recognizes that his daughter has Down syndrome. For motives he tells himself are good, he makes a split-second decision that will haunt all their lives forever. He asks his nurse, Caroline, to take the baby away to an institution. Instead, she disappears into another city to raise the child as her own. Compulsively readable and deeply moving, The Memory Keeper’s Daughter is a brilliantly crafted story of parallel lives, familial secrets, and the redemptive power of love. (synopsis from author’s web site)

So read the book, tune into the movie and enjoy a great story.


A sad loss for the Down syndrome community

Melissa Ann Riggio, 20-year old beloved daughter of Steve, CEO of Barnes & Noble, Inc., and wife, Laura, died peacefully on April 7, 2008 at University Hospital of Columbia and Cornell in Manhattan, after a courageous battle with leukemia. She was surrounded by her parents, sisters 22-year old Laura and 16-year old Christina, both of Bernardsville, New Jersey, and other members of her loving family. Born March 25, 1988 in Brooklyn, New York, she lived in Bernardsville, New Jersey, since 1999. MAelissa, who was born with Down Syndrome, lived a full and extraordinary life. She was a strong and optimistic young woman and was an inspiration to everyone who had the opportunity to know her. In May 2003, Melissa received the Self Advocate Award from The National Down Syndrome Society (NDSS) at their annual spring luncheon in Manhattan, which also honored Senator Hillary Rodham-Clinton. A graduate of Bernards High School, Class of 2007, Melissa was crowned Prom Queen at her senior prom. She was employed by Somerset Hills YMCA in Basking Ridge, where she was an office worker. Melissa had plans to enter a post secondary program so that she could become a counselor at the YMCA. She loved to read and listen to music and she loved to write. A poet and a songwriter, Melissa was taking voice, drama, and dance lessons and aspired to become a singer one day. Some of Melissa’s songs were recorded by acclaimed singer/ songwriter Rachel Fuller. Melissa is also survived by her paternal grandmother, Lena Riggio, of Brooklyn, New York and many aunts, uncles and cousins. Viewing at the funeral home is for family only. A Mass of Christian Burial, open to the public, will be offered on Friday, April 11 10am, at Church of St. James, 184 South Finley Avenue, Basking Ridge, New Jersey. In lieu of flowers, the family has asked that donations be made to The Valerie Center at Morristown Memorial Hospital, Morristown Memorial Health Foundation, P.O. Box 1956, Morristown, New Jersey 07962. When making a donation, please indicate that it is in memory of Melissa Riggio. Services provided by Gallaway & Crane Funeral Home: www.gcfuneralhome.com or 908-766-0250.
Published in the New York Times on 4/9/2008 - Click HERE or on Melissa’s picture to read her poetry and see her web site.


Happy First Birthday Emma!

Emma’s benefit on Sunday was wonderful. The outpouring of love and support for Emma and her family was simply awesome. They went through 75 lbs. of dry spaghetti and raised lots of money to help her family. I told Robin, Emma’s mom, that this was quite a 1st birthday party. I also asked her how they would celebrate her second birthday! Well, sweet girl, we hope you know that you are loved and cared for. Happy Birthday![gallery]