Archive for October, 2007

It’s not about disabilities, it’s about our abilities!”

Get It Down; 31 for 21

Last Friday the Today Show aired a segment with Chris Burke and John McGinley discussing the National Buddy Walk in New York City last weekend.

“It’s not about disabilities, it’s about our abilities!”  Chris Burke

Chris Burke shared this wonderful message live and you can watch the segment here: http://video.msn.com/?mkt=en-us&brand=msnbc&fg=rss&vid=297ed153-7e7f-450c-aea8-7f91e5f509ba&from=05

Chris Burke (Life Goes On) is the NDSS Goodwill Ambassador and John McGinley (NBC Scrubs) is the National Buddy Walk Spokesman and father of Max a young boy with Down syndrome.

We were honored to have met both Chris Burke and John McGinley at the New York City Buddy Walk in 2005 when Elly (and Grandma Harriet) were chosed to be in the Time Square Video. What a fun memory for us!

 

Photo Sharing and Video Hosting at Photobucket

Photo Sharing and Video Hosting at Photobucket

Photo Sharing and Video Hosting at Photobucket

Photo Sharing and Video Hosting at Photobucket


Elly is loved!

Get It Down; 31 for 21

Yesterday I shared pictures of our extended family and how important family is to my children. Age doesn’t seem to matter to any of them since they just love being around each other. The bond between cousins is strengthened each time they are together. Today I want to reflect on Elly’s diagnosis and it’s impact on “the cousins”.

There have been cousins who have spoken out about how “cool” kids with Down syndrome are. Their have been cousins who have laughed and cried with Elly. There have been cousins who have chosen “Down syndrome Awareness” for their platform. There have been cousins who have walked in the Buddy Walk. There are cousins who watch Signing Time.  There are cousins who are convinced that all life is precious. There are cousins who are proud of Elly. This picture features a pencil drawing of Elly by cousin Alex in art class. Isn’t it great! God Bless “the cousins”.

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Snow Vacation 2007

The highlight of every summer for my kids is “Snow Vacation”. That’s when Greg’s family of 12 adults and 19 kids (age 22-2) get together for an entire week. We rent a ski lodge complete with a resteraunt style kitchen and bunk rooms for kids (by gender and age). The adults get their own rooms :)! The accomodations are nice but not luxurious and nobody cares. We simply enjoy cousins, aunts, uncles and grandparents while eating too much and staying up too late. There is also fishing, swimming, boating, golf, card games, crafts, bonfires, etc…………We are blessed and we all know it!

Since my blog is so behind and I have so many great memories from this summer that I want to record, I plan to add photo highlights until I get caught up! Elly is the youngest cousin (by at last 6 years) and she loved sharing Signing Time with her older cousins. They loved it too as evidenced in the family pictures of 19 kids signing zoo animals!! Can you guess the animals?

Snow Family Vacation - June 2007

Snow Vacation - 19 kids

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Thunder player finds joy in family struggles

Get It Down; 31 for 21

Record Sports Columnist     April 08, 2007

It doesn’t take long for Stockton Thunder defenseman Beau Geisler to get over a loss.

It’s not because when he walks into his home he’s confronted with the reality that there are greater challenges to overcome than losing a hockey game. Rather, it’s because he’s overcome with sheer joy.

It envelopes him whenever he looks at his 21-month-old twin sons, Wyatt and Bryce, who were born with Down syndrome.

He and his wife, Heidi, devout Christians, view their boys as a gift.

“We believe God won’t give you any more than you can handle,” Beau said. “God gave us two children with Down syndrome, so we must be able to handle them.”

“I love the reaction I get when I take them to the store,” Heidi said. “I get triple takes. They say, ‘Oh, you have twins.’ Then they realize they have Down syndrome. I am so proud to be their mother. … Everywhere I go, people tell me how beautiful they are.”

Beau, 26, and Heidi, 22, came to Stockton in October for Beau’s third season of a professional hockey career that began in Reading, Pa., with an ECHL team, followed by a season in Latvia.

The couple, who first met at the Evangelical Free Church in Grand Rapids, Minn., that Beau’s parents had helped start, married in July, 2004 and wanted to have a family right away.

Beau, the eldest of 11 children, almost always had a baby in his house. Heidi, though, was the youngest of three girls and had no experience with infants, but Beau convinced her motherhood would come naturally.

They were ecstatic when they learned in November, 2004, that Heidi was pregnant. At the six-week mark, an ultrasound revealed twins.

“We were just giggling the whole way home,” Heidi said.

Twins didn’t run in the Geisler family until Beau’s mom, Ruthie, delivered two sets of twin girls.

His mother wasn’t there to celebrate his good news. She died when Beau was 10. She learned she had leukemia when she went to deliver the last of her seven children and died 13 days later.

The rest of the family, though, which had grown to 11 children when Beau’s father married a woman with two children and then they had two more of their own, was ecstatic.

News that the first grandchildren of Beau and Heidi’s families would be twins made for a Merry Christmas in 2004.

Wyatt arrived first, on July 3, 2005, and Beau beamed with pride. He saw a perfect baby, but the doctor told him they would need to run a test for Down syndrome.

“Bryce wasn’t even born, so obviously when he told me that I was like, ‘OK, I’ve got to be with Heidi because she’s delivering our other baby. I went to her and she delivered Bryce,” Beau said.

“The hospital’s pretty small, and I was wheeling (the babies) back to our room and I met her mom and dad, and they’re like ‘Is everything all right?’ I didn’t know what to say, so I just said, ‘Yeah, they’re doing great.’ I was still in shock. I didn’t know anything about Down syndrome.”

He didn’t know it is caused by an extra chromosome, that 1 in 800 to 1,000 babies in this country are born with the condition. And while older women are more susceptible to having babies with Down syndrome, 80 percent of babies are born to mothers under the age of 35, just because more younger women deliver babies.

When Beau welcomed his newborn children, he didn’t want to think that his boys would develop more slowly than other children, that they would be more likely to have heart or digestive track problems.

“I wanted to enjoy their birth, their new life, my two new sons,” Beau said. “I wanted to enjoy that, take that all in. Maybe an hour later they could have told me, let us enjoy the moment.”

Instead, doctors had told the two separately, and Beau needed to talk to Heidi.

They were shocked. They cried together, and wondered why.

Those thoughts were momentary.

“We were at the point when they were born, we just wanted to hold them and be near them,” said Heidi, who went from not knowing if she could be a mother to suddenly being a mom with two special needs children. “Beau and I, when we had them, knew we would give them … “

She started to cry, admonishing herself for giving way to tears.

“We knew we would give them the best life we could, and treat them great, and everything we’d do with a normal child, we’d do with them.

“We’re not going to hold them back. We won’t be ashamed of them.”

The two boys seem just like any other toddlers as they run around the family’s north Stockton home, stuffing basketballs into a miniature hoop, turning on the television set, riding their three-wheel bikes and playing with a stash of toys.

Teaching them to sit up, to crawl, to walk and communicate has just taken more time and effort on the part of the parents.

“You learn a new kind of patience,” Heidi said. “It’s more like perseverance.”

Sitting came at seven months, when they were in Latvia. Walking came last fall, after they’d moved here. They also learned to ride their tricycles and took their first swim in a blow-up pool during this stop of their daddy’s professional hockey career.

Although Beau considered retirement as recently as two summers ago, Stockton has been a great fit for him and his family. Playing the game he loves a few more years seems more likely.

“We want them to be proud of their dad, to know he played professional hockey, and that they lived in Europe and California,” Heidi said.

Hockey is in his immediate future, but Beau looks further down the road when he looks at his twins.

“I’ve changed my thoughts, my dreams,” Geisler said. “I love hunting and fishing. Maybe they won’t be able to do that. Maybe they will. One day I’d like to be able to take them with me. I’d like to take them four-wheeling.”

He wants to show them the things he loves, just as the parent of any child does. It’s the same vision he and Heidi have held since their babies were born and they learned they had Down syndrome.

“We had two awesome kids. We just had to shift our focus,” Heidi said. “We still have dreams of a child who can run and play, but we put them in a new direction.”

The boys challenge one another. When Bryce sees Wyatt stuff the ball through the basketball hoop, he wants to do it, too.

“I’m so glad I have two boys with Down syndrome and not one,” Heidi said. “They’ll be there for each other.”

Eventually, Beau and Heidi expect to add to their family.

In the meantime, raising the twins is demanding enough.

“Every now and then, when it’s hard, you’re overwhelmed, and if the thought (of why) crosses my mind, I know why. It’s because we’re meant to be their parents. We’re perfect for them,” Heidi said.

Added Beau, “We don’t want anyone else to have them. We feel lucky, fortunate.”

Contact columnist Lori Gilbert at (209) 546-8284 or lgilbert@recordent.com. Visit her blog.